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Listening and Learning Together: Building a Bridge of Trust

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RESEARCH PRIORITIES AND ISSUES:

  • Confidentiality issues—no medical profiling.
  • Emphasis on cultural diversity.

These are issues we as DCLG members consider as of the utmost importance.  At our meetings we have deliberated the need for legislation prohibiting discrimination based on biomedical discoveries on genetic factors for risks of cancer and other serious illnesses. In addition, we have often discussed confidentiality and the need for cultural diversity as we listen to presentations and consider topics ranging from clinical trials to tissue banking.

The mission of NCI is to improve human health through biomedical and behavioral research. Research involving human participants is a necessary and important part of that mission.  Therefore, NIH is committed to assuring that all of its research involving human participants promotes their rights and welfare.

For a guide on understanding informed consent, please view www.cancer.gov/clinicaltrials/conducting/informed-consent-guide.

To learn more about the numerous ways in which NCI protects participants involved in clinical trials, please view www.cancer.gov/clinicaltrials/digestpage/protecting-participants.

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