TOWN HALL MEETING

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Click here for a printable version of the Town Hall Meeting (PDF)

TABLE OF CONTENTS

Overview & Purpose

NCI’s Office of Liaison Activities (OLA)

Ordering NCI Publications

Advocacy in the Cancer Community

NCI’s Office of Cancer and Alternative Medicine (OCCAM)

Rare Cancers

William Natcher

The Breast Cancer Research Stamp

Policy Issues

Cancer Screening

Rural Health

Education Issues on Clinical Trials

Cervical Cancer

Research Priorities & Issues

Cancer Survivorship Issues

Palliative Care & End-of-Life Issues

Cancer Prevention Issues

Cancer Research & Women

Adolescents & Young Adults with Cancer

The NCI Director’s Consumer Liaison Group (DCLG) hosted a successful Town Hall Meeting for advocates on the first evening, June 19, 2006, of the Listening and Learning Together: Building a Bridge of Trust Summit.

The purpose of the Town Hall Meeting was to give the DCLG an opportunity to listen to consumer advocates as they voiced their issues and concerns.  Following the Summit, DCLG members decided they wanted to respond to what they heard.

We, the DCLG members, want the advocates who attended the Town Hall Meeting to know that we appreciated your presence and your willingness to give your constituents a voice at the Summit.  We listened and learned from each of you!  As advocates and DCLG members, we support the areas of research mentioned at the meeting.  This document contains a range of questions posed at the Summit and responses that were assembled by the DCLG from resources NCI makes available to the public.

ADVOCACY ISSUES: 

• Many of your groups are asking for a seat at the table.
• Many of you asked where to go, whom to call to have more input and to obtain information.
• Many of you said that a better understanding of the science will enable you to be better legislative advocates.
• Many of you asked to have the role of advocates at NCI clarified.
• Many of you expressed an interest in and a willingness to aid NCI’s communication by placing information or questions on your group’s Web site, but you don’t know what NCI would like advocacy groups to post.
• Many of you recommended that DCLG/NCI/OLA have more summits.

The DCLG was honored to have the opportunity to bring together this diverse group of advocates.  Many of you wanted the DCLG to be aware of what’s on the combined cancer advocacy community’s mind.  We heard you loud and clear.  As advocates ourselves, DCLG members are keenly aware of the issues and concerns brought forth at the meeting.

Many of the questions raised by advocates suggested a real commitment to learn more, not only about the DCLG, but also about the National Cancer Institute’s mission and goals.  Above all, advocates said they wanted to be involved by being a voice for their communities.

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